585-482-5060

Caregiver Resources in Rochester, NY

Caregiver's Guide to Parkinson's

Caring for a loved one with Parkinson's Disease is a journey that requires understanding, resilience, and a wealth of resources.

In this comprehensive guide, we offer a compassionate roadmap for caregivers navigating the complexities of Parkinson's care.

Get the guide

We care for you

Our Caregivers. If you are looking for local resources, tips, and support, read the information we have prepared below.
Special Events

Rochester Parkinson Network Introduces its Respite Care Grant Program

This program will provide respite care in the form of paid companion care to eligible care partners of people with Parkinson's Disease.

Grant applicants can fill out the application form and submit by email to rpnrespitegrant@gmail.com

or mail to:
  • Rochester Parkinson Network
  • PO Box 18606
  • Rochester, NY 14618
Download Application

Caring for Caregivers Event

Quarterly, we invite Caregivers with a loved one with a Parkinson's Diagnosis to join us at Wellness 360 for an evening of appreciation. This is not a support group. These are events where your loved ones are cared for and you can spend an evening enjoying good food, entertainment, and good friends!
​
Stay Tuned for the next event
​
These events are always FREE for all caregivers.
​
❤️Needing a place for your loved one? Bring them along for supervised fun from the staff and volunteers at Wellness 360! Your loved one will be in the same building but in a different area. We will provide pizza, dessert, and water for your loved ones. There is a pool table, ping pong, TV, and comfortable seating for everyone’s needs. There is a small cost of $10 if you choose to bring your loved ones.

Express your interest in attending our next Caregivers' event.Express your interest in attending our next Caregivers' event.

We Work Together To Play, Have Fun, Design And Create

When: The last Tuesday of each month
Time: 4-5 PM
Where: Webster Rec Center, Chiyoda Drive.

This will be open to all caregivers whether or not you are part of Wellness 360. Feel free to invite a friend who may be in need! Unable to leave your spouse or loved one alone? No problem! Bring him/her along where they will be able to socialize in the large game room, complete with a TV, pool table, foosball, ping pong table, and large comfortable chairs. Caregivers will meet in a separate room across the hall from the game room where we can enjoy a cup of coffee while sharing our experiences.
​
Please consider coming to get the support we all need.
Print Flyer

Parkinson's Foundation

From early cognitive change and mild cognitive impairment to dementia, cognitive changes look very different from one person with Parkinson’s to another. Our free online course will walk care partners through different stages of cognitive decline.



Parkinson's Foundation
Online Course
As a caregiver, it can be difficult to recognize changes that occur slowly in the person with Parkinson’s over time. If Parkinson’s symptoms begin to significantly affect mobility, memory or thinking skills, it may be time to consider if it is still safe for your loved one to perform tasks that he or she once did easily as part of the daily routine.

Parkinson's Foundation
Learn More
Cognition is the act of mental processing. There are many aspects of cognition: thinking, understanding, learning,
remembering, problem solving, language and more. Why are we talking about cognition in a book on Parkinson’s disease (PD)? Because about 30% of all people with PD report changes in their memory and thinking ability.

Parkinson's Foundation
Download PDF

Hospital Action Plan

As you already know, getting diagnosed with
Parkinson’s disease (PD) is a life-changing experience.
What you may not know is that people with Parkinson’s disease are admitted to the hospital 50 percent more than their peers. And, once admitted, they typically
have longer hospital stays.

Parkinson's Foundation
Download Article

Home Safety Tips

Parkinson’s disease (PD) symptoms often impact daily life. From mobility challenges — such as PD-related tripping or “freezing” episodes that can lead to falls — to vision changes. Adapting your home to create a safer environment can lower the risk of PD-related injuries and keep you aging in place.


Parkinson's Foundation
Read More

Life Span

Local Contact: Katy Allen,
Division Leader Caregiver Services
Lifespan of Greater Rochester
585-287-6369 Office Direct








Lifespan

This is a regional non-profit serving Monroe and surrounding Finger Lakes counties in NY.









Lifespan
What is your Emergency Plan?

What would happen if YOU, the caregiver, were to be injured or suddenly unavailable? What would happen to your loved one? This emergency plan was shared by a caregiver from our friends at LifeSpan. Click below to print your emergency plan. Keep one in a prominent location (like your fridge) to direct the EMS to your full
emergency plan.

Senior Living Consutants

  • Personalized initial consultations to understand your needs
  • Provide a list of communities that suit your preferences
  • Guided tours of communities with Holly
  • Explring financial opportunities to lower monthly community cost
  • Exploring financial opportunities to lower monthly community costs
  • Assistance setting up assessments and filling out applications
  • Holly gives you the confidence you need to choose the right community
    • Independent Living
    • Enriched Independent Living
    • Enhanced Assisted Living
    • Memory Care
    • Enhanced Memory Care
Holly Crocker COTA/L, ECDCS
Senior Living Advisor
Rochester, NY
Phone: 585-729-4848
Email: holly@seniorlivingconsultantsNY.com
Website: seniorlivingconsultantsNY.com



Grief Support

Karin Cole
Certified professional coach, somatic therapist and grief specialist

Karin helps to empower individuals to navigate through life's challenges and find purpose during times of loss, transition, and change. To learn more about Karin's services, or to sign up for a 30 min free consultation, click below. 



Find out More

Financial Advisor

Constantine J Kitrinos, CPFA
Managing Partner | Financial Advisor

Small steps taken today can significantly impact your financial preparedness for future health challenges. At Monarch Wealth Management, we're passionate about empowering individuals to achieve financial well-being and navigate through unforeseen circumstances. The one thing I can say about a plan is that it will change. Many times, life will head off in a direction you couldn't ever have imagined. When that happens, your plan should adapt to those changes. We offer comprehensive financial planning, investment strategies, and personalized guidance tailored to your unique needs.
Monarch Wealth Management, LLC | 1688 Monroe Avenue, Rochester, NY
Office: 585.484.1400 | Fax: 585.484.1414 | Toll-Free: 800.480.1580
Email: constantine@monarchwealthmanagement.com
Monarch Wealth Management

Medical Transportation

WASPS 

(Webster Association of Senior Program Supporters) is a group of volunteers who provide transportation for retired and disabled residents who live within the Webster School District. They help to get them to and from medical and dental appointments and for other health-related trips such as to pharmacies, as well as banks, barbers, hairdressers, and tax preparation services.
W.A.S.P

Medical Transportation​

Need a ride? Thanks to our Friends at LifeSpan, a ride is just a call away. LifeSpan has put together an amazing list of local places that can give you a lift to your medical appointments. If you would like to speak with someone from Lifespan about more resources and support, check out our link below!



Transportation

Hospice Care

Webster Comfort Care Home's management team is a group of citizens who believe in the dignity and value of every person, and who care about our community.

United in our desire to provide hospice-based care, our role is a privileged one. We believe in individualized care to accommodate the physical, emotional, social and spiritual needs of the Home's residents. We also wish to embrace each resident's family and friends with love and support that continues throughout the grieving process. Partnering with local hospice agencies, we provide complete and comprehensive around-the-clock care.
Learn More

Rezenity Health

Donna Kreher, PhD
Founder and Director
Rezenity Health
www.rezenityhealth.com
We understand that every person has unique needs and preferences, and that traditional psychotherapy isn't the best fit for everyone. Our approach is collaborative and flexible, with a focus on personalized care to address the specific concerns of each individual.

We offer a broad range of approaches for navigating changes in health/physical function, trauma, and life stressors.



Learn More

Compassionate Consulting, LLC

Jean Oswald RN CA CNHP CPC
Local Visiting Nurse and End-of-Life Consultant
Sign up for Newsletter
30 years experience in Rochester, offering:
  • Advocacy for Caregivers and their loved ones – at the doctor’s office, in the hospital, or at home: facilitating expression of views and making wishes known to improve communication with healthcare providers
  • Translating complex medical-ese to better understand diagnoses, prognoses, treatments, and options
  • Home visits to support individual health needs
  • Navigation assistance inside the healthcare system
  • Education for (when the time comes) engaging in Palliative Care or Hospice
  • Ongoing support and guidance through the stages of dying
There is no insurance coverage; all services are private pay.

Respite Care


Local Contact: Katy Allen,
Pronouns (she, her, hers)
Division Leader Caregiver Services
Lifespan of Greater Rochester
585-287-6369 Office Direct



Read More
New York State Caregiving and Respite Coalition supports all people engaged in caregiving and is dedicated to quality and accessible respite for all ages, conditions, and disabilities.
Please click below for information on your $600 reimbursement money for respite services. 

Respite Care
​
Respite is planned or emergency care provided to a child or adult with special needs, in order to provide temporary relief to family caregivers who are caring for that child or adult. For more information on how to find and choose respite care, click below.
Read More

Medical Equipment

Accessibility Equipment

Here is a great resource for medical equipment. A special thanks to our friends at LifeSpan for researching and compiling these resources!
PDF Copy

Comfort Linens

Specialty sheets and attractive sleepwear to improve independence with bed mobility for the Parkinson's Diagnosis.  


Read More

Blog

Understanding Effective Therapies for Lymphedema

Lymphedema is a chronic condition that occurs when the lymphatic system is compromised. It leads to swelling typically in the arms...
Read More

Strong Bones, Stronger Future: Understanding and Preventing Osteoporosis

May is National Osteoporosis Awareness and Prevention Month—a time dedicated to raising awareness about bone health and empo...
Read More

Parkinson’s & the Power of Neuroplasticity: How to Rewire the Brain for Better Movement

Did you know that your brain has the ability to rewire itself—even with Parkinson’s? This incredible ability is called...
Read More

How to Schedule an Appointment

Whether you're recovering from an injury, seeking relaxation through massage, or embracing the vitality of group fitness, Wellness 360 is your partner in health. Explore our services, meet our team, and take the first step towards a healthier, happier you.
Schedule your appointment or drop by our clinic today. Your path to wellness starts here.

Do you accept insurance?

Yes, Wellness 360 does accept most insurance plans.
Wellness 360 does an initial verification of your insurance benefits as a courtesy to you, however it is your responsibility to monitor your benefits and provide accurate and up to date insurance information.



Do I need a script from my Medical Doctor?

No, in most cases, you do not need a script from your doctor to set up your initial evaluation for PT. In NY, you are allowed ten visits or up to 1 month of PT visits without a script. This is called Direct Access. We will be in direct communication with your doctor about your treatments. In some cases, you will need a script. Please call 585-482-5060 to find out if you can participate in Direct Access.

How do I schedule?

You can schedule in 3 easy ways!
Give us a call at 585-482-5060
Email us at info@wellness360fitness.com
Fill out our contact form.






Open Form
Submit Form
Sending...
Thank you, your form has been submitted.
Open Form Popup