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Caregivers Resource Page

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Caregiver's Guide to Parkinson's

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Caring for a loved one with Parkinson's Disease is a journey that requires understanding, resilience, and a wealth of resources. In this comprehensive guide, we offer a compassionate roadmap for caregivers navigating the complexities of Parkinson's care.

Click here to download

We care for you, our Caregivers. If you are looking for local resources, tips, and support, read the information we have prepared, below.

Caring for Caregivers Event

Wellness 360

Quarterly, we invite Caregivers with a loved one with a Parkinson's Diagnosis to join us at Wellness 360 for an evening of appreciation. This is not a support group. These are events where your loved ones are cared for and you can spend an evening enjoying good food, entertainment, and good friends!  

Stay Tuned for the next event

These events are always FREE for all caregivers.

❤️Needing a place for your loved one?  Bring them along for supervised fun from the staff and volunteers at Wellness 360!  Your loved one will be in the same building but in a different area.  We will provide pizza, dessert, and water for your loved ones.  There is a pool table, ping pong, TV, and comfortable seating for everyone’s needs.  There is a small cost of $10 if you choose to bring your loved ones.

Express your interest in attending our next Caregivers' event.

Support Group

When:  The last Tuesday of each month
Time:  4-5 PM
Where:  Webster Rec Center, Chiyoda Drive. 
This will be open to all caregivers whether or not you are part of Wellness 360. Feel free to invite a friend who may be in need! Unable to leave your spouse or loved one alone? No problem!  Bring him/her along where they will be able to socialize in the large game room, complete with a TV, pool table, foosball, ping pong table, and large comfortable chairs.  Caregivers will meet in a separate room across the hall from the game room where we can enjoy a cup of coffee while sharing our experiences.

Please consider coming to get the support we all need.


Parkinson's Foundation

Wellness 360

From early cognitive change and mild cognitive impairment to dementia, cognitive changes look very different from one person with Parkinson’s to another. Our free online course will walk care partners through different stages of cognitive decline.

Homepage | Parkinson's Foundation

Wellness 360

As a caregiver, it can be difficult to recognize changes that occur slowly in the person with Parkinson’s over time. If Parkinson’s symptoms begin to significantly affect mobility, memory or thinking skills, it may be time to consider if it is still safe for your loved one to perform tasks that he or she once did easily as part of the daily routine

Homepage | Parkinson's Foundation

Wellness 360

Hospital Action Plan

As you already know, getting diagnosed with
Parkinson’s disease (PD) is a life-changing experience.
What you may not know is that people with Parkinson’s disease are admitted to the hospital 50 percent more than their peers. And, once admitted, they typically
have longer hospital stays.

Homepage | Parkinson's Foundation

Wellness 360

Home Safety Tips

Parkinson’s disease (PD) symptoms often impact daily life. From mobility challenges — such as PD-related tripping or “freezing” episodes that can lead to falls — to vision changes. Adapting your home to create a safer environment can lower the risk of PD-related injuries and keep you aging in place.

Wellness 360

Parkinson's Foundation Safety Kit

At the Parkinson’s Foundation, it is our mission to help people with Parkinson’s disease live better lives, and that includes staying safe while in the hospital.We help people with PD be “Aware in Care,” which means they:

  • Understand the risks associated with hospital stays.

  • Have tools to play an active role in their care.

  • Are prepared for a hospital visit, whether planned or unplanned.

  • Have a plan to get the best possible care in the hospital.

Wellness 360

Cognition is the act of mental processing. There are many aspects of cognition: thinking, understanding, learning,
remembering, problem solving, language and more. Why are we talking about cognition in a book on Parkinson’s disease (PD)? Because about 30% of allpeople with PD report changes in their memory and thinking ability.

Homepage | Parkinson's Foundation

Life Span

Lifespan Rochester

Local Contact:  Katy Allen, 

Division Leader Caregiver Services

Lifespan of Greater Rochester 

585-287-6369 Office Direct

Wellness 360s

This is a regional non-profit serving Monroe and surrounding Finger Lakes counties in NY.

Wellness 360

What is your Emergency Plan? 

What would happen if YOU, the caregiver, were to be injured or suddenly unavailable? What would happen to your loved one? This emergency plan was shared by a caregiver from our friends at LifeSpan. Click below to print your emergency plan. Keep one in a prominent location (like your fridge) to direct the EMS to your full emergency plan. 

*Local  Oasis Senior Advisor 

Holly Crocker
  • We are a FREE service that provides experienced, professional help in finding the "right" senior living community.

  • Help guide, simplify and understand the process and what to expect and look for in the perfect housing situation.

  • We take the burden of finding a senior housing option off your shoulders by handling all of the research and matching services for you.

  • Provide a personalized list of local housing options that will best meet your specific needs

  • Setting up tours at each community you select, and then going with you until you've found the "right place," and you feel confident with your choice.

  • We also offer a number of resources for seniors and their families so that you can feel fully prepared and confident in your senior housing selection. 

Holly Crocker COTA/L, CFPS
Senior Living Advisor, Oasis Senior Advisors 

Rochester, NY

Phone:  585-729-4848  

Email: Website:

Holly Crocker
Holly Crocker

Grief Support 

Karin Kole

Karin Cole, certified professional coach, somatic therapist and grief specialist

Karin helps to empower individuals to navigate through life's challenges and find purpose during times of loss, transition, and change.  To learn more about Karin's services, or to sign up for a 30 min free consultation, click below. 

Financial Advisor


Small steps taken today can significantly impact your financial preparedness for future health challenges. At Monarch Wealth Management, we're passionate about empowering individuals to achieve financial well-being and navigate through unforeseen circumstances. The one thing I can say about a plan is that it will change. Many times, life will head off in a direction you couldn't ever have imagined. When that happens, your plan should adapt to those changes. We offer comprehensive financial planning, investment strategies, and personalized guidance tailored to your unique needs.

Monarch Wealth Management, LLC | 1688 Monroe Avenue, Rochester, NY 

Office: 585.484.1400 | Fax: 585.484.1414 | Toll-Free: 800.480.1580


Constantine J Kitrinos, CPFA

Managing Partner | Financial Advisor

Medical Transportation 


WASPS (Webster Association of Senior Program Supporters) is a group of volunteers who provide transportation for retired and disabled residents who live within the Webster School District. We help to get them to and from medical and dental appointments and for other health-related trips such as to pharmacies, as well as banks, barbers, hairdressers, and tax preparation services.

Lifespan Rochester

Medical Transportation​

Need a ride? Thanks to our Friends at LifeSpan, a ride is just a call away.  LifeSpan has put together an amazing list of local places that can give you a lift to your medical appointments. If you would like to speak with someone from Lifespan about more resources and support, check out our link below!

Hospice Care

Webster Comfort Care

Webster Comfort Care Home's management team is a group of citizens who believe in the dignity and value of every person, and who care about our community. United in our desire to provide hospice-based care, our role is a privileged one. We believe in individualized care to accommodate the physical, emotional, social and spiritual needs of the Home's residents. We also wish to embrace each resident's family and friends with love and support that continues throughout the grieving process. Partnering with local hospice agencies, we provide complete and comprehensive around-the-clock care.

Compassionate Consulting, LLC

Jean Oswald

Jean Oswald, RN CA CNHP CPC: Local Visiting Nurse and End-of-Life Consultant

30 years experience in Rochester, offering:

  • Advocacy for Caregivers and their loved ones – at the doctor’s office, in the hospital, or at home: facilitating expression of views and making wishes known to improve communication with healthcare providers

  • Translating complex medical-ese to better understand diagnoses, prognoses, treatments, and options

  • Home visits to support individual health needs 

  • Navigation assistance inside the healthcare system

  • Education for (when the time comes) engaging in Palliative Care or Hospice

  • Ongoing support and guidance through the stages of dying

There is no insurance coverage; all services are private pay.

Respite Care

Lifespan Rochester

Local Contact:  Katy Allen, 

Pronouns (she, her, hers) 

Division Leader Caregiver Services

Lifespan of Greater Rochester 

585-287-6369 Office Direct


New York State Caregiving and Respite Coalition supports all people engaged in caregiving and is dedicated to quality and accessible respite for all ages, conditions, and disabilities.  

Please click below for information on your $600 reimbursement money for respite services. 

Wellness 360

Respite Care

Respite is planned or emergency care provided to a child or adult with special needs, in order to provide temporary relief to family caregivers who are caring for that child or adult. For more information on how to find and choose respite care, click below.

Medical Equipment

Wellness 360

Here is a great resource for medical equipment. A special thanks to our friends at LifeSpan for researching and compiling these resources!

Wellness 360

Comfort Linens

Specialty sheets and attractive sleepwear to improve independence with bed mobility for the Parkinson's Diagnosis.  


Wellness 360

Caregivers Guide to 

Bed Mobility

Caregiving can be exhausting. When evening arrives, rest is the best medicine to restore and renew your mind and body. Here are some tips to make your bedtime routine less stressful.

Wellness 360

Caregivers Guide:  Eating with Ease 

Being a caregiver can be a tiring job. You are trying to care for your loved one and trying to find the right solutions to ease your day-to-day stressors. When you feel all alone in the world, you can rest assured that you are not alone! Our Caregivers guide will help you solve some of your problems without needing to spend time on Google.  Rest your mind; you are in a community of support!

Wellness 360

Top 10 Ways to #BeASelfCareGiver


Every November, the Parkinson’s Foundation joins with organizations across the country to honor care partners for National Family Caregivers Month. This year, we are reminding care partners about the importance of caring for themselves while caring for a loved one with Parkinson’s.
Read our 10 meaningful ways you can #BeASelfCareGiver.

Parkinson's Foundation

Wellness 360

Activity Ideas for Caregivers


Needing to find activities to do for your loved one? Here is a great list of things to do to improve cognition and fine motor skills or just to keep busy. This list was written as a group effort by our Wellness 360 Caregivers.

Wellness 360

Mobile Physical Therapy


Wellness 360 is now offering a mobile outpatient Physical Therapy service. This means you now have the option to do your Physical Therapy service in our beautiful Webster clinic or at your own home!

Wellness 360

Caregivers Guide to 

Urinary Incontinence 

People diagnosed with Parkinson's Disease can suffer from bladder difficulties. The most common symptoms experienced by people diagnosed with Parkinson's are the need to urinate frequently or the trouble delaying urination once the need is perceived, creating a sense of urinary urgency.


Care Partner Program

This Free Parkinson's Foundation Care Partner Program: Building a Care Partnership is designed by and for Parkinson's disease family Care Partners.  These are self-paced online courses, created for anyone caring for someone living with Parkinson's. 

Bonus Material:  Assistive Devices

Gait Belt 

Gait Belts are great for safely transferring our loved ones and preventing falls.  Join Tara & Nicole, Physical Therapists of Wellness 360 to teach you how to use your gait belt correctly. 

Wellness 360 now offers Mobile Physical Therapy

evidence-based exercises in the comfort of your own home.


Join Nicole & Tara, Physical Therapists from Wellness 360, to learn how to set up, fold up, and correctly use a standard wheelchair.  Needing more care?  Want to make your loved one more independent?  Give us a call and ask us about Physical Therapy.  We now offer Mobile PT.  Same great service in the comfort of your own home!

Quad Cane

Wellness 360

Join Tara Moore, PT, DPT as she discusses what a quad cane is, who should use it, how to fit a quad cane to your size, and how to properly use it

Wellness 360 now offers Mobile Physical Therapy

Click below for more details

Walker Use

Join Tara Moore, PT, DPT as she discusses how to correctly use a walker, size a walker, and break down a standard and front-wheeled walker.

Wellness 360 now offers Mobile Physical Therapy evidence-based exercises in the comfort of your own home.

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