Caregivers Resource Page
Caregiver's Guide to Parkinson's
Caring for a loved one with Parkinson's Disease is a journey that requires understanding, resilience, and a wealth of resources. In this comprehensive guide, we offer a compassionate roadmap for caregivers navigating the complexities of Parkinson's care.
Caring for Caregivers Event
Quarterly, we invite Caregivers with a loved one with a Parkinson's Diagnosis to join us at Wellness 360 for an evening of appreciation. This is not a support group. These are events where your loved ones are cared for and you can spend an evening enjoying good food, entertainment, and good friends!
Stay Tuned for the next event
These events are always FREE for all caregivers.
❤️Needing a place for your loved one? Bring them along for supervised fun from the staff and volunteers at Wellness 360! Your loved one will be in the same building but in a different area. We will provide pizza, dessert, and water for your loved ones. There is a pool table, ping pong, TV, and comfortable seating for everyone’s needs. There is a small cost of $10 if you choose to bring your loved ones.
Express your interest in attending our next Caregivers' event.
Support Group
When: The last Tuesday of each month
Time: 4-5 PM
Where: Webster Rec Center, Chiyoda Drive.
This will be open to all caregivers whether or not you are part of Wellness 360. Feel free to invite a friend who may be in need! Unable to leave your spouse or loved one alone? No problem! Bring him/her along where they will be able to socialize in the large game room, complete with a TV, pool table, foosball, ping pong table, and large comfortable chairs. Caregivers will meet in a separate room across the hall from the game room where we can enjoy a cup of coffee while sharing our experiences.
Please consider coming to get the support we all need.
Parkinson's Foundation
From early cognitive change and mild cognitive impairment to dementia, cognitive changes look very different from one person with Parkinson’s to another. Our free online course will walk care partners through different stages of cognitive decline.
As a caregiver, it can be difficult to recognize changes that occur slowly in the person with Parkinson’s over time. If Parkinson’s symptoms begin to significantly affect mobility, memory or thinking skills, it may be time to consider if it is still safe for your loved one to perform tasks that he or she once did easily as part of the daily routine
Hospital Action Plan
As you already know, getting diagnosed with
Parkinson’s disease (PD) is a life-changing experience.
What you may not know is that people with Parkinson’s disease are admitted to the hospital 50 percent more than their peers. And, once admitted, they typically
have longer hospital stays.
Home Safety Tips
Parkinson’s disease (PD) symptoms often impact daily life. From mobility challenges — such as PD-related tripping or “freezing” episodes that can lead to falls — to vision changes. Adapting your home to create a safer environment can lower the risk of PD-related injuries and keep you aging in place.
Parkinson's Foundation Safety Kit
At the Parkinson’s Foundation, it is our mission to help people with Parkinson’s disease live better lives, and that includes staying safe while in the hospital.We help people with PD be “Aware in Care,” which means they:
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Understand the risks associated with hospital stays.
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Have tools to play an active role in their care.
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Are prepared for a hospital visit, whether planned or unplanned.
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Have a plan to get the best possible care in the hospital.
Cognition is the act of mental processing. There are many aspects of cognition: thinking, understanding, learning,
remembering, problem solving, language and more. Why are we talking about cognition in a book on Parkinson’s disease (PD)? Because about 30% of allpeople with PD report changes in their memory and thinking ability.
Life Span
What is your Emergency Plan?
What would happen if YOU, the caregiver, were to be injured or suddenly unavailable? What would happen to your loved one? This emergency plan was shared by a caregiver from our friends at LifeSpan. Click below to print your emergency plan. Keep one in a prominent location (like your fridge) to direct the EMS to your full emergency plan.
*Local Oasis Senior Advisor
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We are a FREE service that provides experienced, professional help in finding the "right" senior living community.
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Help guide, simplify and understand the process and what to expect and look for in the perfect housing situation.
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We take the burden of finding a senior housing option off your shoulders by handling all of the research and matching services for you.
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Provide a personalized list of local housing options that will best meet your specific needs
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Setting up tours at each community you select, and then going with you until you've found the "right place," and you feel confident with your choice.
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We also offer a number of resources for seniors and their families so that you can feel fully prepared and confident in your senior housing selection.
Holly Crocker COTA/L, CFPS
Senior Living Advisor, Oasis Senior Advisors
Rochester, NY
Phone: 585-729-4848
Email: HCrocker@youroasisadvisor.com Website: OasisSeniorAdvisors.com/rochester
Grief Support
Karin Cole, certified professional coach, somatic therapist and grief specialist
Karin helps to empower individuals to navigate through life's challenges and find purpose during times of loss, transition, and change. To learn more about Karin's services, or to sign up for a 30 min free consultation, click below.
Financial Advisor
Small steps taken today can significantly impact your financial preparedness for future health challenges. At Monarch Wealth Management, we're passionate about empowering individuals to achieve financial well-being and navigate through unforeseen circumstances. The one thing I can say about a plan is that it will change. Many times, life will head off in a direction you couldn't ever have imagined. When that happens, your plan should adapt to those changes. We offer comprehensive financial planning, investment strategies, and personalized guidance tailored to your unique needs.
Monarch Wealth Management, LLC | 1688 Monroe Avenue, Rochester, NY
Office: 585.484.1400 | Fax: 585.484.1414 | Toll-Free: 800.480.1580
Constantine J Kitrinos, CPFA
Managing Partner | Financial Advisor
Medical Transportation
WASPS (Webster Association of Senior Program Supporters) is a group of volunteers who provide transportation for retired and disabled residents who live within the Webster School District. We help to get them to and from medical and dental appointments and for other health-related trips such as to pharmacies, as well as banks, barbers, hairdressers, and tax preparation services.
Medical Transportation
Need a ride? Thanks to our Friends at LifeSpan, a ride is just a call away. LifeSpan has put together an amazing list of local places that can give you a lift to your medical appointments. If you would like to speak with someone from Lifespan about more resources and support, check out our link below!
Hospice Care
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Webster Comfort Care Home's management team is a group of citizens who believe in the dignity and value of every person, and who care about our community. United in our desire to provide hospice-based care, our role is a privileged one. We believe in individualized care to accommodate the physical, emotional, social and spiritual needs of the Home's residents. We also wish to embrace each resident's family and friends with love and support that continues throughout the grieving process. Partnering with local hospice agencies, we provide complete and comprehensive around-the-clock care.
Compassionate Consulting, LLC
Jean Oswald, RN CA CNHP CPC: Local Visiting Nurse and End-of-Life Consultant
30 years experience in Rochester, offering:
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Advocacy for Caregivers and their loved ones – at the doctor’s office, in the hospital, or at home: facilitating expression of views and making wishes known to improve communication with healthcare providers
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Translating complex medical-ese to better understand diagnoses, prognoses, treatments, and options
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Home visits to support individual health needs
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Navigation assistance inside the healthcare system
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Education for (when the time comes) engaging in Palliative Care or Hospice
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Ongoing support and guidance through the stages of dying
There is no insurance coverage; all services are private pay.
Respite Care
Local Contact: Katy Allen,
Pronouns (she, her, hers)
Division Leader Caregiver Services
Lifespan of Greater Rochester
585-287-6369 Office Direct
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Blogs
Caregivers Guide: Eating with Ease
Being a caregiver can be a tiring job. You are trying to care for your loved one and trying to find the right solutions to ease your day-to-day stressors. When you feel all alone in the world, you can rest assured that you are not alone! Our Caregivers guide will help you solve some of your problems without needing to spend time on Google. Rest your mind; you are in a community of support!
Top 10 Ways to #BeASelfCareGiver
Every November, the Parkinson’s Foundation joins with organizations across the country to honor care partners for National Family Caregivers Month. This year, we are reminding care partners about the importance of caring for themselves while caring for a loved one with Parkinson’s.
Read our 10 meaningful ways you can #BeASelfCareGiver.
Parkinson's Foundation
Caregivers Guide to
Urinary Incontinence
People diagnosed with Parkinson's Disease can suffer from bladder difficulties. The most common symptoms experienced by people diagnosed with Parkinson's are the need to urinate frequently or the trouble delaying urination once the need is perceived, creating a sense of urinary urgency.
Bonus Material: Assistive Devices
Gait Belt
Gait Belts are great for safely transferring our loved ones and preventing falls. Join Tara & Nicole, Physical Therapists of Wellness 360 to teach you how to use your gait belt correctly.
Wellness 360 now offers Mobile Physical Therapy
evidence-based exercises in the comfort of your own home.
Wheelchair
Join Nicole & Tara, Physical Therapists from Wellness 360, to learn how to set up, fold up, and correctly use a standard wheelchair. Needing more care? Want to make your loved one more independent? Give us a call and ask us about Physical Therapy. We now offer Mobile PT. Same great service in the comfort of your own home!
