Caregivers Resource Page
Caregiver's Guide to Parkinson's
Caring for a loved one with Parkinson's Disease is a journey that requires understanding, resilience, and a wealth of resources. In this comprehensive guide, we offer a compassionate roadmap for caregivers navigating the complexities of Parkinson's care.
Rochester Parkinson Network Introduces its
Respite Care Grant Program
.png)
This program will provide respite care in the form of paid companion care to eligible care partners of people with Parkinson's Disease.
Grant applicants can fill out the application form and submit by email to rpnrespitegrant@gmail.com
or mail to:
Rochester Parkinson Network
PO Box 18606
Rochester, NY 14618
Caring for Caregivers Event
Quarterly, we invite Caregivers with a loved one with a Parkinson's Diagnosis to join us at Wellness 360 for an evening of appreciation. This is not a support group. These are events where your loved ones are cared for and you can spend an evening enjoying good food, entertainment, and good friends!
Stay Tuned for the next event
These events are always FREE for all caregivers.
❤️Needing a place for your loved one? Bring them along for supervised fun from the staff and volunteers at Wellness 360! Your loved one will be in the same building but in a different area. We will provide pizza, dessert, and water for your loved ones. There is a pool table, ping pong, TV, and comfortable seating for everyone’s needs. There is a small cost of $10 if you choose to bring your loved ones.
Express your interest in attending our next Caregivers' event.
Support Group
When: The last Tuesday of each month
Time: 4-5 PM
Where: Webster Rec Center, Chiyoda Drive.
This will be open to all caregivers whether or not you are part of Wellness 360. Feel free to invite a friend who may be in need! Unable to leave your spouse or loved one alone? No problem! Bring him/her along where they will be able to socialize in the large game room, complete with a TV, pool table, foosball, ping pong table, and large comfortable chairs. Caregivers will meet in a separate room across the hall from the game room where we can enjoy a cup of coffee while sharing our experiences.
Please consider coming to get the support we all need.
Parkinson's Foundation
From early cognitive change and mild cognitive impairment to dementia, cognitive changes look very different from one person with Parkinson’s to another. Our free online course will walk care partners through different stages of cognitive decline.
As a caregiver, it can be difficult to recognize changes that occur slowly in the person with Parkinson’s over time. If Parkinson’s symptoms begin to significantly affect mobility, memory or thinking skills, it may be time to consider if it is still safe for your loved one to perform tasks that he or she once did easily as part of the daily routine.
Hospital Action Plan
As you already know, getting diagnosed with
Parkinson’s disease (PD) is a life-changing experience.
What you may not know is that people with Parkinson’s disease are admitted to the hospital 50 percent more than their peers. And, once admitted, they typically
have longer hospital stays.
Home Safety Tips
Parkinson’s disease (PD) symptoms often impact daily life. From mobility challenges — such as PD-related tripping or “freezing” episodes that can lead to falls — to vision changes. Adapting your home to create a safer environment can lower the risk of PD-related injuries and keep you aging in place.
Cognition is the act of mental processing. There are many aspects of cognition: thinking, understanding, learning,
remembering, problem solving, language and more. Why are we talking about cognition in a book on Parkinson’s disease (PD)? Because about 30% of all people with PD report changes in their memory and thinking ability.
Life Span
What is your Emergency Plan?
What would happen if YOU, the caregiver, were to be injured or suddenly unavailable? What would happen to your loved one? This emergency plan was shared by a caregiver from our friends at LifeSpan. Click below to print your emergency plan. Keep one in a prominent location (like your fridge) to direct the EMS to your full emergency plan.
Senior Living Consutants
-
Personalized initial consultations to understand your needs
-
Provide a list of communities that suit your preferences
-
Guided tours of communities with Holly
-
Explring financial opportunities to lower monthly community cost
-
Exploring financial opportunities to lower monthly community costs
-
Assistance setting up assessments and filling out applications
-
Holly gives you the confidence you need to choose the right community
-
Independent Living
-
Enriched Independent Living
-
Enhanced Assisted Living
-
Memory Care
-
Enhanced Memory Care
-
Holly Crocker COTA/L, ECDCS
Senior Living Advisor
Rochester, NY
Phone: 585-729-4848
Email: holly@seniorlivingconsultantsNY.com
Website: seniorlivingconsultantsNY.com
Grief Support
Karin Cole, certified professional coach, somatic therapist and grief specialist
Karin helps to empower individuals to navigate through life's challenges and find purpose during times of loss, transition, and change. To learn more about Karin's services, or to sign up for a 30 min free consultation, click below.
Financial Advisor
Small steps taken today can significantly impact your financial preparedness for future health challenges. At Monarch Wealth Management, we're passionate about empowering individuals to achieve financial well-being and navigate through unforeseen circumstances. The one thing I can say about a plan is that it will change. Many times, life will head off in a direction you couldn't ever have imagined. When that happens, your plan should adapt to those changes. We offer comprehensive financial planning, investment strategies, and personalized guidance tailored to your unique needs.
Monarch Wealth Management, LLC | 1688 Monroe Avenue, Rochester, NY
Office: 585.484.1400 | Fax: 585.484.1414 | Toll-Free: 800.480.1580
Constantine J Kitrinos, CPFA
Managing Partner | Financial Advisor
Medical Transportation
WASPS (Webster Association of Senior Program Supporters) is a group of volunteers who provide transportation for retired and disabled residents who live within the Webster School District. They help to get them to and from medical and dental appointments and for other health-related trips such as to pharmacies, as well as banks, barbers, hairdressers, and tax preparation services.
Medical Transportation
Need a ride? Thanks to our Friends at LifeSpan, a ride is just a call away. LifeSpan has put together an amazing list of local places that can give you a lift to your medical appointments. If you would like to speak with someone from Lifespan about more resources and support, check out our link below!
Hospice Care
.png)
Webster Comfort Care Home's management team is a group of citizens who believe in the dignity and value of every person, and who care about our community. United in our desire to provide hospice-based care, our role is a privileged one. We believe in individualized care to accommodate the physical, emotional, social and spiritual needs of the Home's residents. We also wish to embrace each resident's family and friends with love and support that continues throughout the grieving process. Partnering with local hospice agencies, we provide complete and comprehensive around-the-clock care.
Rezenity Health
We understand that every person has unique needs and preferences, and that traditional psychotherapy isn't the best fit for everyone. Our approach is collaborative and flexible, with a focus on personalized care to address the specific concerns of each individual.
We offer a broad range of approaches for navigating changes in health/physical function, trauma, and life stressors.
Compassionate Consulting, LLC
Jean Oswald, RN CA CNHP CPC: Local Visiting Nurse and End-of-Life Consultant
30 years experience in Rochester, offering:
-
Advocacy for Caregivers and their loved ones – at the doctor’s office, in the hospital, or at home: facilitating expression of views and making wishes known to improve communication with healthcare providers
-
Translating complex medical-ese to better understand diagnoses, prognoses, treatments, and options
-
Home visits to support individual health needs
-
Navigation assistance inside the healthcare system
-
Education for (when the time comes) engaging in Palliative Care or Hospice
-
Ongoing support and guidance through the stages of dying
There is no insurance coverage; all services are private pay.
Respite Care
Local Contact: Katy Allen,
Pronouns (she, her, hers)
Division Leader Caregiver Services
Lifespan of Greater Rochester
585-287-6369 Office Direct
.png)
Blogs
Caregivers Guide: Eating with Ease
Being a caregiver can be a tiring job. You are trying to care for your loved one and trying to find the right solutions to ease your day-to-day stressors. When you feel all alone in the world, you can rest assured that you are not alone! Our Caregivers guide will help you solve some of your problems without needing to spend time on Google. Rest your mind; you are in a community of support!
Caregivers Guide to
Urinary Incontinence
People diagnosed with Parkinson's Disease can suffer from bladder difficulties. The most common symptoms experienced by people diagnosed with Parkinson's are the need to urinate frequently or the trouble delaying urination once the need is perceived, creating a sense of urinary urgency.
Bonus Material: Assistive Devices
Gait Belt
Gait Belts are great for safely transferring our loved ones and preventing falls. Join Tara & Nicole, Physical Therapists of Wellness 360 to teach you how to use your gait belt correctly.
Wellness 360 now offers Mobile Physical Therapy
evidence-based exercises in the comfort of your own home.
Wheelchair
Join Nicole & Tara, Physical Therapists from Wellness 360, to learn how to set up, fold up, and correctly use a standard wheelchair. Needing more care? Want to make your loved one more independent? Give us a call and ask us about Physical Therapy. We now offer Mobile PT. Same great service in the comfort of your own home!
